[Article by Christine Arata]
Compassionate Caregivers: Experienced Voices Heard
“There is time for work. And there is time for love. That leaves no other time.” Coco Chanel
When I was 5 years old, my mom went to work and I became a latch key kid. I remember lying on my mother’s bed as she went through her closet to find clothes for her day. I also remember times waking up and she would be gone, to work. Little did I know later in life she would need me and I would get that time with her back. My mom was diagnosed with Alzheimer’s in 2006. I was working full-time. I was also living with her at the time. Her needs gradually increased and I decided it best to quit my job in 2007 to work part-time. It is now 2011 and I have worked on and off as my mother has progressed in the disease. Aside from her need to work in my early years, my mom has always been a great support to me. I could always count on her. In her weakness, we became even closer. I am thankful for these years I am spending with her and I am happy I can keep her home with me. She earned her home and garden. Luckily, my brother and sister agreed. It’s not all easy; I don’t want to make a fable out of caregiving. It does take its toll, but it’s the reason you do it that can carry you through it. Instead of statistics to explain the issue, I have compiled stories from a few caregivers in the San Francisco Bay Area and one from Arizona.
Ashlee found herself caring for her grandmother while raising her daughter of only a few months. Her grandmother enjoyed having the young companionship that often brought smiles. She too found it was quality time with her grandmother and that she learned valuable lessons from her. Her family was close and her grandmother had done a lot for them all, and despite having a difficult life, she remained positive and was a strong woman. Ashlee added, “We felt our time taking care of her was in return for the wonderful things she had done for all of us, we had a family support system. This led me to my strength and patience.” Ashlee admits she gave up some freedom and a normal social life being a live-in caregiver. She found this challenging at first, but found her balance over time. She states, “We need a support system, when we receive it helps our positivity.” “…People forget to give back to their community and lend a hand. Caregivers are making a difference and leading to a rewarding life by learning something valuable from our patients.”
Christine Arata may be reached at christine.arata@me.com.











